This is Chance –
Chance was born on February 22, 2011 with spina bifida.
Spina bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect. Spina bifida can happen anywhere along the spine if the neural tube does not close all the way. The backbone that protects the spinal cord does not form and close as it should. This often results in damage to the spinal cord and nerves.
Chance was born with myelomeningocele, the most severe type of spina bifida, where an opening in his back was present at birth. Due to this defect he underwent surgery when he was only about four hours old to repair the defect and at only a week old underwent a surgery to place a shunt due to hydrocephalus (additional fluid on the brain) that commonly develops in spina bifida patients. He’s since undergone a total of eleven surgeries and has proven what a strong little guy he is. Despite all the challenges he’s faced in his short life he’s proven to be such a happy little guy who is such a blessing.
Attention Bloggers, Educators, Entrepreneurs, Enthusiast, Philanthropist, Social Media Gurus, and anyone else who can help spread the word. I need your help in proving social media can equal social good by supporting the Central Florida WALK-N-ROLL® for Spina Bifida.
I posted awhile back about an example of how Social Media Can Lead to Social Good. Now I want you to help me prove it!
I’m asking for your support, social media networks, words of wisdom, philanthropy, and charity to pass along this event and help me raise money for Team Chance!
My personal goal is $750 – if everyone that reads my blog in one day would donate $5 this would be completed instantly.
The Team Chance goal is $10,000! Can we do it? With your help we can!
Why is this important to me?
A fellow faculty member and friend, Amanda Kern, is the mother of Chance. I have been following his story, even before he was born, as Amanda shared his journey through her blog. She is a tenure track Professor at Valencia in Graphics Technology, and a professional photographer with amazing work, especially with newborns. She has donated her time photographing for various charities and support groups to bring happiness to others. I wanted to donate some of my time helping raise money for this cause and support the Central Florida WALK-N-ROLL® for Spina Bifida in honor of this special little guy. This month I was able to get the Apopka Food Truck Round Up on board to raise donations: $173.50 was raised that night!
Please take a moment to support Team Chance so we can help all those affected by spina bifida.
Here are a few other of the cutest kids that need your help:
(Photos by Amanda Kern Photography)
Here is a fellow blogger making a difference ever day! Laura @Laurita86 blogs about her continued passion to be an advocate for Spina Bifida – Read about her journey: http://www.holdinoutforahero.org/
How You Can Help?
Share my blog: Tweet, Google+, Facebook, Blog, & Email Away!
- Help @professorjosh reach Team Chance’s goal of $10,000 for CFL WALK-N-ROLL for Spina Bifida! http://wp.me/p10Pdu-vs (Pls RT)
- Help @professorjosh prove Social Media = Social Good by creating awareness about Spina Bifida! http://wp.me/p10Pdu-vs
Make a Donation:
Can I see this RED by the end of the October?
Since December 1975, the Spina Bifida Association of Central Florida was has been serving adults and children living with Spina Bifida and has been recognized as a I.R.S. 501(c)3 nonprofit organization.since January 1979. Our organization comprises of familes affected by Spina Bifida, medical professionals who have dedicated their lives to treating and preventing this birth defect, and community volunteers who support our mission to promote the prevention of Spina Bifida and enhance the lives of all affected.
Join us for the WALK-N-ROLL benefiting Spina Bifida Association of Central Florida
Saturday, October 29, 2011 8:00 am – 11:00 am
Location: Blue Jacket Park in Orlando, Florida